We attended an open session at CICC today, designed to gather feedback on the efficacy of Jo's care and others like her. We gave our feedback about the lack of continuity of care, with Jo commenting that she felt abandoned since collaborative care had ceased.
One of the other people giving feedback was a chap called Ian, who had suffered something similar to Jo, with left side hemiparesis and neglect. He seemed to be making much faster recovery, able to walk with a zimmer frame and move the left arm, with some use of the left hand. This was simultaneously inspiring and depressing. Inspiring because it demonstrates that progress is possible but depressing as he has achieved this in a little over eight weeks. Interestingly, although he had quite good ability with his left hand, he admitted he frequently forgot to use it. This was confirmed by him frequently moving this limb in conversation whilst apparently unaware he was doing so. This is a phenomenon I have often observed in Jo, albeit more in relation to the left leg than arm.
We did discover that Jo’s consultant neurologist can prescribe further physiotherapy from Collaborative Care. It is also possible that the medical insurance may cover a course of private treatment if so prescribed.
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