The Community Stroke Support liaison came around. She is going to see if we can get extra money from the council for an extra visit when I am away. That way we could have five or even six visits on those days. Then there could be a morning, lunchtime, mid-afternoon, teatime and bedtime visits. If the bed time visit was earlier on those days that would suffice to cover the periods when Jo needs a toilet break. She also said the hospital physiotherapist could request further visits from the Collaborative Care team for rehabilitation exercise if she felt that was necessary. It all seems such a nonsense all this chopping and changing, especially as the physiotherapists all work on the same team! That is symptomatic of a National Health System that is overrun by muddle managers I guess.
This blog was started to share my experience of caring for someone with severe hemiplegia in the hope it may help others.
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Different strokes...
It has been nearly seven years since Jo suffered a "controlled" stroke whilst undergoing brain surgery to clip the blood vessel that had caused a subarachnoid haemorrhage in 2000. Sadly two successive coilings did not occlude the bleed and so Jo had a craniotomy in August 2008. During surgery the surgeon discovered the coiling had penetrated the rear of the aneurysm, occasioning emergency repair procedures. Consequentially they spent one and a half hours longer in surgery than expected, leading to the right half of Jo's brain forgetting it has to look after the left side of her world.
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